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Do you have information on multifocal choroiditis (MFC)? I have had this for over two years. Since it is a rare disorder, I am also trying to find out how many people in the United States have been diagnosed with MFC and PIC (punctate inner choroidopathy—a similar inflammatory condition).
These are rare conditions with minimally good statistical data available. The frequency is likely to be in the range of about 1/50,000 individuals or so but no one really knows. The condition is of unknown origin although significant study has been done, mostly eliminating causes such as infections like TB and parasitic infestations like histoplasmosis.
It is probably a form of auto-immune disorder especially since the only effective therapies have been in the anti-immune spectrum such as steroids, cyclosporin and immunosupressives like azathioprine and methotrexate. There are specialists in the field of uveitis who can address this problem and I assume you are seeing a retinal specialist in your part of the country who would be thrilled to recommend such a specialist. Unfortunately, there are no specific markers for these conditions and the prognosis is what we doctors like to call "guarded" which usually means not too good. The cases are isolated, and not infectious so you pose no risk to those around you.
Answered by: Richard Bensinger, MD
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